| stichting-jambo.nl | Stichting Jambo | The foundation supports individuals and organizations that initiate innovative projects, with the quality of the projects assessed by the board of directors. Stichting Jambo has supported various projects, including financial contributions for photos on cemeteries and donations for Christmas packages. Potential candidates for support are organizations and individuals who offer initiatives within nature conservation, landscape, art, culture, history, monuments, local history, or social help. | Child Welfare → Support Organizations 270 | objective 415 initiative 1297 foundation 6678 community 7931 | Limburg → Venray 1601 |
| nierstichting.nl | Nierstichting | The website contains information on symptoms, research, treatments, and preventing kidney damage, with special attention to kidney patients, their families, and kidney donors. Various events, such as the Kidney Festival, science days, and Kidney Week, are offered, along with informative materials and recipes focused on healthy eating. The website offers opportunities for donating, leaving a bequest, volunteering, and requesting the Nier Magazine, and facilitates an online community for support and advice. | Nutrition → Healthy Recipes 40 | kidney 21 nutrition 4935 donation 5110 community 7931 research 8967 | |
| matchis.nl | Stichting Matchis | The website provides information about bone marrow donation, how it works, who can participate, and why it's important. It offers information about the registration process, including completing an online form and collecting tissue samples. It emphasizes the need for sufficient bone marrow donors to increase the chances of a successful match and save the lives of patients. | Non-Profit Organizations → Healthcare Organizations 10 | transplant 23 tissue 51 patient 4082 registration 4366 | |
| nefrovisie.nl | Nefrovisie | The website details that approximately 18,000 patients in the Netherlands receive treatment for chronic kidney replacement therapy, including kidney transplantation and dialysis, with transplant patients averaging 58 years old and dialysis patients averaging 66 years old. In 2024, nearly 1,080 kidney transplants were performed in the Netherlands, and 1,900 patients started chronic dialysis, with a significant number being first-time initiations of this treatment. The website highlights feedback mentioning a ‘well-established quality system’ and a ‘trustworthy relationship with patients’. | Government & Administration → Government Organizations 1002 | transplantation 20 dialysis 35 patient 4082 research 8967 | |
| nierwijzer.nl | Creapolis | The website primarily focuses on kidney patients, discussing when dialysis or transplantation may be necessary and outlining available treatment options. Furthermore, Nierwijzer-Mantelzorgers offers support for the relatives of kidney patients, providing examples and advice on maintaining their own well-being. The website includes various resources such as examples of other kidney patients, videos, a choice guide, and animations to make the information accessible. | Social Services → Caregiving 722 | transplantation 20 kidney 21 dialysis 35 caregiver 1167 video 6714 | |
| dietistennierziekten.nl | Diëtisten Nierziekten Nederland | The website offers various features for members, including login access, registration, and access to expert knowledge, guidelines, and a forum. Patients can find information about their condition via the website, while professionals can consult background information on nephrological conditions. The website also includes news, a newsletter archive, and a search function to find dietitians in the area who meet the association’s quality requirements. | Organizations → Professional Associations 1004 | dietitian 299 forum 1362 patient 4082 news 15293 | |
| niercheck.nl | UMCG | The research, primarily conducted by the UMCG, has demonstrated that a simple urine test is effective in detecting kidney damage. A large-scale study is being conducted in four regions of the Netherlands to identify heart and blood vessel diseases, type 2 diabetes, and chronic kidney damage in older adults. Participants are being invited to undergo the urine test and attend a follow-up study, which runs until January 2021. | | participant 1934 research 8967 | |
| beterschappen.nl | Beterschappen | The organization focuses on approximately 220,000 people at high risk of death due to their kidney damage, offering a group program for patients with reasonable kidney function. Beterschappen provides lectures, workshops, and one-on-one guidance, with a focus on meal planning and support for families. They also organize pilot programs with partners such as NVN, LUMC, UMCG, WUR, and the Dutch Kidney Foundation. The website includes articles on lifestyle, COVID-19, and post-transplant guidance. The organization has a long history of web development and has been supporting patients since 2000. | Entrepreneurship → Social Enterprises 299 | lifestyle 2918 partner 4272 nutrition 4935 coach 25810 | |
| dcg.nl | Dialyse Centrum Groningen | The website provides information on various dialysis treatments, including center dialysis, home hemodialysis, and peritoneal dialysis. Additionally, the website includes sections on lifestyle, nutrition, exercise, relationships, work, transportation, and vacation, with specific attention to vacation dialysis. The website also offers support for patients with reading difficulties or who speak a different language, through the reading aid of Tolkie and regular newsletters. | Hospital & Acute Services → Dialysis 10 | dialysis 35 patient 4082 newsletter 6504 treatment 21203 | Oldambt → Scheemda 165 |
| nv-radboud.nl | NierpatiëntenVereniging Radboudumc | The association was founded in 2002 through a collaboration of patients and healthcare providers from the Radboudumc Department of Nephrology and is committed to improving patient care. The Patient Advisory Council (PAR) of Radboudumc advises the Board of Directors on the quality and safety of patient care from the patient's perspective, and stimulates departments to actively involve patients and/or their loved ones. The website contains news, articles about kidney research, and developments in artificial kidney technology, such as implantable and portable artificial kidneys, and the latest newsletters from the association. | Hospital & Acute Services → Dialysis 10 | kidney 21 dialysis 35 patient 4082 association 8562 research 8967 care 12338 | |
| werkenbijdianet.nl | Dianet | Dianet is an expertise center for dialysis care that focuses on improving the quality of life for people with kidney failure. Dialysis care is provided at home, in Dianet dialysis hubs, and on-site, notably at the Gezondheidshuis in Utrecht and the Amsterdam UMC. Dianet employs 400 staff members, skilled professionals dedicated to providing the best care to patients and their families. | Hospital & Acute Services → Dialysis 10 | dialysis 35 staff 3405 vacancy 6598 care 12338 training 28133 | North-Holland → Amsterdam 41253 |
| nierdaagse.nl | Nierstichting | The Nierdaagse 2022 took place in June, with participants collectively taking 16,461,538 steps. Through participation and donations, €25,000 was raised for research into the healing of kidney diseases, involving 183 participants. The website provides information about the Nierdaagse, including walking routes, the ability to upload and sponsor walking activities, and the impact of the campaign (63,419 km walked and 1,264 donations). | Outdoor Adventures → Walking 1260 | step 284 participant 1934 walk 2161 donation 5110 research 8967 | |
| domesticostudy.nl | Domestico Study | The DOMESTICO project is a collaborative initiative of various organizations, including Nefrovisie, NFN, NIV, NVN, Nierstichting, V&VN, ZonMw, industry, and insurance providers, aiming to map the consequences of home dialysis. The project conducts both prospective and retrospective studies to explore the positive and negative effects of home dialysis on quality of life and clinical outcomes in relation to costs. Furthermore, research is being done into ‘Good Practices & Shared Decision Making’ and a caregiver project to investigate the experiences of caregivers. | Research → Medical Research 384 | quality of life 111 decision 476 caregiver 1167 cost 1990 research 8967 | |
| elyseklinieken.nl | Elyse renal care clinics | The homepage presents the care forms that Elyse offers, current news, and information for referrers. Elyse offers various care forms, such as hemodialysis, outpatient care (focused on diabetes, blood pressure, and cholesterol), multidisciplinary kidney failure clinics, and vacation dialysis. The clinics are located in Amstelveen, Gorinchem, Kerkrade, Winterswijk and Woerden and offer a wide range of services, from information to aftercare after a kidney transplant. | Hospital & Acute Services → Hospitals 735 | dialysis 35 job postings 676 caregiver 1167 | Limburg → Kerkrade 1031 |
| nierteamaanhuis.nl | Nierteam aan Huis (NTAH) | The team helps patients to discuss living donation more openly. Two hospital staff members visit patients at home to inform them and their invited family members and friends. Professionals can contact the regional academic hospital to participate or to find out more about kidney teams in their area. | Research → Medical Research 384 | dialysis 35 family member 72 patient 4082 education 13471 | Netherlands → Utrecht 48901 |
| deniercast.nl | De Niercast | The podcast series addresses questions and dilemmas surrounding kidney donation, the diagnosis of an inherited kidney disease, and potential treatments. De Niercast challenges misunderstandings and misconceptions about kidney donation and aims to contribute to solving the donor shortage. The podcast is presented by Ed Hoogeveen and Roeland Loosen, who share their own experiences with kidney disease and donation from their personal perspective. | Entertainment → Podcasts 1067 | podcast series 15 kidney 21 disease 285 perspective 882 donation 5110 story 8285 | |
| npv-maxima.nl | Nierpatiënten Vereniging Máxima | The association was founded in 1973 and is driven by a board consisting of members and individuals connected to the Dialysis Center Máxima. The main objectives are to advocate for the interests of the members, promote contact between patients, and provide educational information. The association organizes various activities, such as day trips, Christmas games, and general meetings, and serves as a link between patients, the dialysis center, the NVN, and the Nierstichting. | | dialysis 35 objective 415 board 3438 patient 4082 association 8562 | North-Brabant → Veldhoven 1485 |
| dialysecentrumravenstein.nl | Dialysecentrum Ravenstein | Dialysis in Ravenstein offers a comfortable and homely environment combined with expert care, allowing patients to engage in their own activities during the treatment. The center employs nephrologists from the Jeroen Bosch hospital and the Bernhoven hospital, ensuring patients receive high-quality care and benefit from experienced staff expertise. Dialysecentrum Ravenstein has contracts with various health insurers and is located in Ravenstein, with ample parking and easy accessibility. | Hospital & Acute Services → Dialysis 10 | dialysis 35 center 1115 staff 3405 patient 4082 environment 4873 insurance 6359 | Oss → Ravenstein 246 |
| thehandis.nl | Stichting The Handi's | The foundation, founded by Marlyn Roelen, offers a space for individuals who feel marginalized from society, focusing on connection, understanding, and celebrating life. The website provides various content, including blogs, videos, a forum, and information about volunteering, as well as partnerships with organizations such as ReadSpeaker. The Handi’s organizes events, workshops, and gatherings focused on inspiration, sport, and social interaction, aiming to create a community where everyone feels welcome. | Social Issues → Diversity 441 | forum 1362 blog 13392 event 45199 | |
| haagsenieren.nl | Haagsenieren.nl | The website contains guidelines, flowcharts, and calculations related to kidney damage and the treatment of end-stage renal failure. A specific protocol has been adapted for the Surinamese healthcare system, including an app for calculating the MDRD value. The working group promotes information exchange among professionals and offers contact options for questions and training. | Primary Care → Doctors 435 | protocol 237 guideline 344 doctor 1397 app 4595 | South-Holland → Haaglanden 427 |
| slidia.nl | Slidia Nierpatiëntenvereniging | The association organizes activities such as outings and meetings with an informative purpose. Slidia collaborates with the Nierstichting and other associations to strengthen its work. The association is affiliated with the Slingeland Hospital dialysis and kidney center in Doetinchem and maintains close contact with the center's management. | Social Organization → Patient Organizations 259 | transplantation 20 dialysis 35 center 1115 region 5412 association 8562 collaboration 16036 | Gelderland → Doetinchem 2706 |
| dianetonline.nl | Dialysecentra | Dialysecentra is an innovative knowledge and expertise center that focuses on providing individual care at any time, from preparation to possible transplantation. The organization offers various dialysis forms, including peritoneal dialysis (PD), home hemodialysis (THD) and nocturnal home hemodialysis (NTHD), center hemodialysis and hospital dialysis, as well as pediatric dialysis and vacation dialysis. Dialysecentra is HKZ-certified and an accredited training facility by Dianet, highlighting the quality and methodical approach of care. | | dialysis 35 patient 4082 care 12338 treatment 21203 | |
| integrateproject.nl | PreventieConsult | Diabetic nephropathy is characterized by a reduced kidney function, resulting in the buildup of waste products in the body and potential damage to other organs. The causes of diabetic nephropathy are complex and include factors such as changes in blood circulation in the kidneys, high blood pressure, poor glucose control, and unhealthy diet. Early symptoms of kidney damage are often not present, but can manifest as nausea, vomiting, loss of appetite, hiccups, and fluid retention, and in severe cases, heart failure and lung problems. | Chronic Diseases → Diabetes 349 | kidney 21 urine 34 blood pressure 53 diabetes 750 | |
| niervoorcorwin.nl | Nier voor Corwin | Corwin Winkelman, 54 years old, is battling IgA Nephropathy (Berger's Disease) and relies on a kidney transplant to avoid dialysis. Ilona Hartensveld donated one of her kidneys to her partner Corwin last year, but it had to be removed after a few weeks. The website presents their story, includes information about IgA Nephropathy, transplant foundations, and a FAQ about living kidney donation. | | kidney 21 transplant 23 donor 757 family 6462 story 8285 | North-Holland → Hilversum 4397 |
| collectiefraven.nl | Raven | Raven actively seeks out stories that are rarely represented in society and showcases these unseen perspectives. The organization emphasizes the experiences of clients, patients, and delinquents, with each individual having the right to tell their story. Raven collaborates with various social partners, including care institutions and youth detention centers, to gain access to the lived experiences of clients. | Conceptual & Interactive Art → Participatory Art 10 | perspective 882 story 8285 collaboration 16036 | |
| npvroermond.nl | Nierpatiënten Vereniging Roermond | The website contains information about medication for kidney damage and newsletters. Yearly program overviews from 2020 to 2024 are available. The website describes activities that have been organized in the past and includes photos. | Social Organization → Patient Organizations 259 | newsletter 6504 membership 10442 | Limburg → Roermond 2602 |
| non-twente.nl | Nierpatiënten vereniging Oost Nederland | The website provides information about dialysis, household rules, privacy policies, and contact details of the association. Patient folders and newsletters are available, as well as an agenda with events organized by the association and the NVN (Dutch Kidney Patients Association). The website includes annual reports, such as the Donatiezorg 2024 annual report, and information on the differences between the regional NON and the national NVN. | Social Organization → Patient Organizations 259 | dialysis 35 patient 4082 agenda 4374 newsletter 6504 association 8562 | Overijssel → Twente 2578 |
| nierpatientenvereniging-zwolle.nl | Nierpatiëntenvereniging Zwolle (NVZ) | The association is affiliated with the Isalaklinieken in Zwolle and Meppel, focusing on patients with various forms of kidney disease. Members can benefit from activities, such as boat trips, and the association offers support to hemodialysis patients, CAPD and APD patients, pre-dialysis patients, transplant recipients, and their partners/heirs. The website contains information about privacy, membership, donations, photos, and links. | Disease & Treatment → Chronic Diseases 1168 | donor 757 privacy 1286 membership 10442 | Overijssel → Zwolle 7395 |
| totaal-check.nl | Totaal-Check | Totaal-Check® is an extensive urine home test that analyzes 11 different parameters in the urine. The test consists of a plastic strip with eleven test fields. A positive result may require further consultation with a doctor. The website emphasizes the usability of urine analysis as an indicator of health and disease, and mentions potential conditions that can be investigated by the test, such as kidney problems, endocrine diseases and abnormalities of the urinary tract. | Pharmaceuticals & Medical Products → Medical Tests 15 | kidney 21 urine 34 test 769 | |
| nierziekte-bauritius.nl | nierziekte-bauritius.nl | René Bauritius, a 39-year-old man from Friesland, has been seriously ill since 2016 and suffers from chronic kidney disease, diabetes, and neuropathy. He lost 25 kg due to diabetes and no longer needs to inject insulin. He describes the physical challenges of dialysis, which takes up a lot of his time and energy. René longs for a kidney transplant to regain his life and be able to study as a web designer/developer and produce music. | Personal → Personal Stories 1027 | dialysis 35 study 720 diabetes 750 music 13170 | |
| rnv-nefron.nl | RNV-NefroN | The association has approximately 135 members. The goal is to allow members to meet in a relaxed atmosphere through activities. RNV-NefroN strives to represent the interests of kidney patients of the Catharina Hospital and the Elkerliek Hospital and provide targeted information. | | sponsors 2642 member 10154 | Helmond → Warande 22 |
| footfixhouten.nl | Foot Fix Pedicure | Yvonne Lablans-van Lamoen is a certified pedicure who has been working since 2005 and specializes in sports, diabetic, rheumatic, and other at-risk feet. The practice offers a wide range of treatments, including standard treatments, diabetic/rheumatic foot care, and sports and children's foot care, with the goal of comfort and preventing complaints. The website emphasizes the importance of foot care, especially for intensive users and people with foot problems such as corns, calluses, ingrown nails, rheumatism, diabetes or pressure points, and encourages visitors to consult a specialist in a timely manner. | Health → Medical Care & Services 29461 | step 284 diabetes 750 foot 1929 pedicure 2196 sport 4228 treatment 21203 | Utrecht → Houten 1677 |